An Overview of Continuity of Care Model for Children With Juvenile Diabetes in West Java Region, Indonesia

INTRODUCTION: The absence of insulin in people with Juvenile Diabetes (JD) requires that they get daily injections of insulin in addition to daily lifestyle that must be managed.Children with JD requires routine care and check-ups from doctors and nurses in hospitals so that the quality of life of children can be optimal. This researchaimed to obtain an overview of JD continuityof care model.

METHOD: The design implementedwas descriptive phenomenology. The number of participantswas 18 people, consisting of6 JD patients:3 parents, 2 guidance and counseling teachers, 2 doctors, 1 midwife and 3 nurses. The data were analyzed using Collaizi method.

RESULTS: This research identified 8 themesi.e1)health education from doctors and nurses is needed regularly;2) the treating doctor does not change frequently because it will be confusing; 3)looking for treatment because of responsibility and feeling sad for children;4) insulin medicine is obtained according to what the doctor programmed; 5) simplified registration system; 6) fast service;7) the teacher knows how to supervise children in school and 8) the parents need a community as means of sharing information.

CONCLUSIONS: Continuity of care model for JD is related to 3 aspectsof service, i.e.continuity of information; communicationcontinuity and continuity of management to becontained in the INKOLA Model (Informasi, Komunikasi and Tata Kelola).The result of research are expected to give information about the need of care so that a proper continuity of care model can be develop.